Advocacy Quick Tips
Navigating the world of special needs—whether in medical, educational, or community settings—can feel overwhelming at times. From managing appointments to advocating for services, there's so much to keep track of. These simple, practical tips are designed to help parents and caregivers feel more prepared, more empowered, and a little less alone on the journey.
01
Carry a notebook
Bring a pad and paper with you to all medical and school appointments. These meetings can be overwhelming and emotional, so writing down important information—or questions to follow up on—can help you stay organized and focused on post-appointment care.
02
Know your local and state leaders
Google your state to find out who your local legislators, school leaders, and community representatives are. These individuals often make decisions that directly impact your child. Building a relationship with them helps ensure they know you and your loved one with special needs.
03
Ask professionals to write it down or email you
Don’t hesitate to ask a doctor, nurse, or school staff member to email or write down the information you need to care for your loved one. Having it in writing can be incredibly helpful for future reference.
04
Seek parent support groups
Chances are, somewhere in your community, state, nation—or even across the world—someone else has walked a similar path. Online support groups can be a lifeline, connecting you to resources, shared experiences, and encouragement. You don’t need to be an active social media user to find these communities. In fact, some parents I know are online solely to stay connected with their support group.